AC7132 - Enhancing Care for Babies, Children and Young People Living with Life Limiting and Life-Threatening illness/condition

In this module you will learn through a combination of interactive lectures, seminars, workshops, simulation and directed study. This module utilises Universal Design for Learning (UDL) principles in the design of teaching, learning and student assessment. UDL principles are designed to assist students to achieve and excel in their studies irrespective of their individual learning needs and as such UDL is designed to promote inclusive curriculum design. The module will be delivered using a blended approach with up to 25% of sessions being online and the majority of the sessions being at Northumbria University. You will be taught by lecturers who are specialists in this sphere of practice with input from people who use services to learn from their experience. As practitioners you will be expected to actively engage in the learning process, participate in group work and seminars and apply what is taught in the university to your practice setting. You will be encouraged to share your own expertise and debate practice issues with peers to further enhance learning and influence the care you provide to patients. Technology enabled learning and simulation will be enhanced through your interaction with the Electronic Learning Portal Blackboard Ultra (Bb) which will give you the flexibility to access the module materials and aids remotely. You will be required to actively engage in research rich learning through an enquiry-based approach to ensure authentic learning.

You will be supported by the module team who have specialist knowledge of caring for babies, children and young people with complex health, life-limiting and life- threatening conditions including social care needs. The module team will provide constructive formative feedback throughout the module delivery, and you will be allocated an individual tutor for academic support and be provided with constructive feedback on your summative assessment. You will also support each other via peer support, through engaging in discussion and debate and learning from each other’s experiences to enhance your learning through action learning sets. A large group tutorial and formative sessions will help you prepare for the summative assessment. Your Programme Lead and Personal Tutor are also available to offer guidance on academic support throughout the programme. The University Libraries at both Coach Lane and City Campus offer an extensive collection of material, both hard copy and electronic, access to international databases and training in information retrieval. A variety of study-skills-related help sheets, and online videos can be found on the library Skills Plus site. You can also access a range of student support and wellbeing services via Student Central at Coach Lane Campus Library or by accessing the student support and wellbeing pages and Ask4Help via your electronic student portal.

All modules at Northumbria include a range of reading materials that students are expected to engage with. Online reading lists (provided after enrolment) give you access to your reading material for your modules. The Library works in partnership with your module tutors to ensure you have access to the material that you need.

Knowledge & Understanding:



Critically apply complex assessment, symptom management and shared decision making when a baby, child or young person shows signs of deterioration.



Critically explore personal and societal attitudes, values and beliefs and the impact of health inequalities which may impact upon babies, children and young people living with life-limiting and life-threatening conditions and complex needs.





Critically examine a range of paediatric focused holistic assessments and decision-making skills and a range of strategies to listen to the child, young person and families/ carers voices.



Intellectual / Professional skills & abilities:



Critically analyse the contemporary evidence underlining partnership working with babies, children, young people and families/ carers to provide person and family centred care to those living with life threatening and life limiting illness or disease.



Personal Values Attributes (Global / Cultural awareness, Ethics, Curiosity) (PVA):



Appreciate the complexity of ethical decision making, especially when supporting families from underrepresented groups, caring for children with life-limiting, life-threatening conditions and complex needs considering the rights of the child.

The formative assessment requires the student to complete various exercises during the lectures, seminars and workshops. Completion of the exercises will demonstrate the ability to:



Research and critically articulate differing types of evidence; discussing with peers and teachers the relevance of the evidence.

Work collaboratively within a learning community; presenting information to module peers in a variety of formats.



The student will be encouraged to seek formative feedback from both module tutors and peers before the summative assessment date which presents them with the opportunity to improve their evidence of learning through reflection and constructive feedback.



Summative assessment

The summative assessment for this module requires the student to produce a 20-minute recorded video presentation which contextualises and critically examines strategies that may bring about a positive change in practice for the service user and/or their family /carers. This will relate to their clinical practice area and be supported with a PowerPoint (or alternative) and comprehensive reference list.

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This module focuses on the support of babies, children, young people and their family's/ carers who live with life limiting or life-threatening illness or disease supporting them through a palliative diagnosis. Developing the knowledge in this complex area of holistic care you will gain confidence in supporting babies, children, young people and families from the diagnosis to transition to adult services or end of life, critically exploring the transitions of care during this time. The module will enable you in complex decision making, in partnership with parents/ carers, babies, children and young people, alongside further developing advanced communication skills to effectively facilitate difficult conversations. By critically examining the research and evidence base to support ethical decision-making, the module aims to enable you to provide effective holistic care amongst a multi professional team across different agencies for the benefit of the baby, child, young person and family/ carer. Supporting family’s, children and young people to be as independent as possible, and to have their views and rights heard is an important element in supporting a life of opportunity and positive experiences.